His father and met with the administration of his school and came up with a great plan. Really, it was fail safe, full of options he got to make to instil in himself a feeling of independence instead of manipulative control of adults. With these choices, there was a punishment if he refused to follow through with any of them. This punishment is he has to stay home and sit at the top of the stairs, do nothing, be bored. He did the two days last week while the program was planned and set up so he understands what it the punishment really is. Monday morning guess what he picked? Bored!
Not surprised! He is 13 years old. He would rather sit and be lazy than go to school. I would have picked it too at his age. Now, this choice had to be because the school won't allow him to be there anymore during his fits. The principle contacted the state and the lady instructed that the child be removed and sent home. Every child has a right to be in school, but in the least restricted environment. Him being so upset that others were being physically harmed and his teachers and aids having to restran, hold to the floor, and use so much physical force that bruises were made is not least restrictive.
I am so tired. Tired of fighting. Every thing feels like a fight. I hate having to be firm, almost mean, to get him to school. Then when he is home, be so strict that he has to sit on and do nothing. That isn't me. I am not a mean person. It kills me. I won't do it anymore!
I don't understand how we can take Seth anywhere else and he is fine. Maybe something has happened to him at school and I don't know what. He is nonverbal and can't tell us. Maybe I should pull him out of school, find a different school even? I have to do what is best for my child. The biggest skill he is learning from school is his OT and speech therapy. If I pulled him out, I could set up other therapy sessions with other facilaties. When we took him for evaluations, he was amazing, his behavior perfect. This staying home being bored isn't doing him any good, it's destructive to his growth he has made!
I am at a loss. Some people often tell me to send him to a type of group home... Um, no! He is my child I will raise him. That drives me crazy when that is thrown out. The other thing that is so frustrating is yes, thing look so amazing and simple on paper. When we meet with officials and administrators they lay out plans, advise, and what have you for us as parents and caregivers to do. And news flash, I DO THEM! FAITHFULLY! I am not the type that just act like I will during meeting then walk away to resume old habits. I freaking try. Some plans work, others don't. So unless you are in my home, have or are living this, you don't understand. The experts are the familie, not the ones with degrees sitting behind the desks telling you what to do.
I am giving my whole life, devoting every waking moment of these kids to these kids. That is my life. Minute by minute is dedicated to insuring they get what is needed. Every parent training skill taught to me is applied. Yes, I let my kids pretty much run my life, but I am in control of the schedule. A simple life would be so ideal, but it's not in my cards. Mine is chaos within the strict schedule. So when you get your kids ready for school, don't yell, kiss them when they leave, because it could be a whole lot worse.