Monday, January 13, 2014

Round and Round We Go

The past 6 months have felt like all I have done is bounce from meeting to meeting. Child evaluation to the next. This week I have 6 meetings or evaluations in span of 4 days. My head may explode. Not joking.... 

I have mentioned before how I constantly educate myself on my children's conditions. Well, I could probably now qualify to be a developmental therapist or specialist. Between my three children's wide affected spectrum range, I am fluent. I have studied autism spectrum disabilities and fragile x syndrome  everyday for the past 13 years. If I didn't need to be as hands on of a mother to these wonderful gifts of mine, I'd go back to school and make a new career. But, I am needed here at home for these kids. 

Tomorrow I will meet at 8 am for my oldest and brainstorm with the junior high school administration about some new rewards and incentives for the token economy system and most likely do a whole new work up and approach of his aggressive behavior essement plan to adjust his IEP all by 11:30 when I meet with my youngest son's developmental therapist to review goals and outcomes. Oh, both will have to be done while I juggle my youngest and little 9 month old niece ( who has fx) who I help watch during the day. 

Wow, 13 years... Do you know I haven't had more than 4 hours of sleep a night in 13 years? Those 4 hours are broken up into one to two hour intervals as well. 

But do you know what? I wouldn't trade it for anything. I love these kids so much. To the point I will go to meetings non stop to help give them a better life. Now, who wants to make us dinner because I will need a nap after tomorrow's schedule. 

1 comment:

SuzQuez said...

You are amazing, Lacie. You're right, no one knows but you.

I hope you can continue to be greatly inspired in all you do.